Stepping up

The care and support of young people, aged 16-40, with life limiting conditions across Essex provided by The J’s Hospice has been recognised nationally as a model of good practice in a new publication, ‘Stepping Up’, from Together for Short Lives. The guide aims to ensure that all young people and their families have a positive experience of growing up and making a good transition from children to adult services.

Bev Barclay, Director of Clinical Services at The J’s Hospice, is a member of the UK Together for Short Lives Transition Taskforce, which wrote the report and works to influence policy and share good practice and research relating to transition for young people with life-limiting conditions.

Bev said: 'We are proud that the work we do locally has been recognised as good practice and is being highlighted to others in the sector, especially as we have only been delivering services for under 5 years. We will be using the guide to highlight the on-going need of specialist care for young adults with complex needs to ensure transition from children to adult services is as smooth as possible. We are also proud that one of our patients was also chosen to write the foreword of the report.'

21 year-old J’s patient Lucy Watts said: 'As young adults we need to be supported to achieve the best quality of life possible, and this guide is here to assist in making transition smooth and manageable.'

The guide will be followed in the summer by an accompanying resource guide to improve commissioning resources for transition for these young people; Stuart Hornsby, Chief Executive of The J’s said: 'By using both these guides in tandem we hope to able to ensure that appropriate funding is provided by all local commissioners to ensure that our services are available to every young adult in Essex that needs our care and support now and in the future.'

The J’s Hospice provide hospice care, respite and support to young adults, aged 16-40 with life limiting conditions and life threatening illnesses across Essex.

Transition Taskforce Vision
That all young people with life-limiting or life-threatening conditions will make the transition to adult services and live their lives as independently as possible according to their wishes, while receiving the care and support they and their families/carers need.

Transition Taskforce Mission
The Taskforce is seeking to overcome the barriers to good transition for young people with life-limiting and life-threatening conditions, by building and strengthening bridges between adult and children’s services.

Please see The J’s website for more information.

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